#GivingTuesday

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Sorry I’ve been so quiet lately.  I promise in 2018 to provide some updates on my journey.

Right now, I’m excited to support #FDRS on #GivingTuesday.    Many of you may know that I’m president of the Fat Disorders Research Society, Inc.  FDRS is dedicated to improving the quality of life for all people affected by adipose tissue disorders through research, education, advocacy and collaboration.

I’m asking for donations to support FDRS.  They fund research, produces videos, hosts an annual conference, distributes educational materials, and is a hub of information for patients, clinicians, and researchers. FDRS uses all donations to further these endeavors. Please consider donating to FDRS to help advocate for people with Lipedema, Dercum’s Disease, and other adipose tissue disorders.

Donations made on Facebook beginning at 8 am ET will be matched by Facebook and the Bill and Melinda Gates Foundation.  Click here to donate and have your donation matched.

Tis the Season

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Tis the Season!  I write you today to ask for a $1, $5, $10, $100 donation to help fund scholarships for patients with lipedema and/or Dercum’s Disease to attend the Fat Disorders Research Society (FDRS) conference “Lipedema and Dercum’s: Goals for the Future and Tools for Today” April 28-30, 2017 in Salt Lake City, Utah. Keynote speaker is world renowned Fat Disorder expert, Karen L. Herbst, MD, PhD. Topics to include surgical and non-surgical treatment options in managing both Lipedema and Dercum’s Disease.

Many patients who suffer from lipedema and/or Dercum’s Disease are no longer able to work and live on a limited fixed income.

FDRS does not want financial hardship to keep anyone from attending the annual conference. As such, they are offering a limited number of financial hardship scholarships to offset registration fees for the 2017 FDRS conference in Salt Lake City, Utah.

FDRS needs our help to fund these financial assistance scholarships.  The registration fees are $175 and covers the expenses of the conference.  Your donation will help a patient attend the conference who would otherwise be unable to attend.

Click here to donate

 

Would you Donate $1?

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FDRS needs to raise an additional $432 in order to fund all of the scholarship applications.  Would you please consider donating today?  $1, $5 or any amount you can give is greatly appreciated!   We are almost at our goal and need your help!

These scholarships will allow a patient with lipedema or Dercum’s Disease to attend the Fat Disorders Research Society (FDRS) conference in April.  Without a financial assistance scholarship, they would be unable to attend.

Click here to donate today

 

 

Can I count on you?

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Would you donate $1 (or even $5)?  If everyone who regularly sees my blog donates $1, we can fund 3 scholarships!

The scholarships are for patients to attend the Fat Disorders Research Society (FDRS) conference “Living with Lipedema and Dealing with Dercum’s” April 8-10, 2016 at the Marriott St. Louis Airport hotel in St. Louis, MO.

Physicians who even know that Lipedema exists are few and far between.  This conference provides patients access to the leading experts on Lipedema and how to manage this condition.

Your donation will help a patient attend the conference who would otherwise be unable to attend.

Click here to donate

 

Help Needed!

I’m raising money to fund scholarships for patients to attend the FDRS conference. Would you consider donating?

The Fat Disorders Research Society (FDRS) is hosting a conference “Living with Lipedema and Dealing with Dercum’s” April 8-10, 2016 at the Marriott St. Louis Airport hotel in St. Louis, MO. Keynote speaker is world renowned Fat Disorder expert, Karen L. Herbst, MD, PhD. Topics to include surgical and non-surgical treatment options in managing both Lipedema and Dercum’s Disease.

Many patients who suffer from lipedema and/or Dercum’s Disease are no longer able to work and live on a limited fixed income.

FDRS does not want financial hardship to keep anyone from attending the annual conference. As such, they are offering a limited number of financial hardship scholarships to offset registration fees for the 2016 FDRS conference in St. Louis, Missouri.

FDRS needs our help to fund these financial assistance scholarships.  The registration fees are $175 and covers the expenses of the conference.  Your donation will help a patient attend the conference who would otherwise be unable to attend.

Click here to donate

 

 

 

Join Me in St. Louis

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I will be attending “Living with Lipedema and Dealing with Dercum’s” April 8-10, 2016 at the Marriott St. Louis Airport hotel in St. Louis, MO. Keynote speaker is world renowned Fat Disorder expert, Karen L. Herbst, MD, PhD. Topics to include surgical and non-surgical treatment options in managing both Lipedema and Dercum’s Disease.

This conference is for patients, doctors, therapists, researchers and anyone else interested in Lipedema and Dercum’s Disease.

Think you may have lipedema?  Are you a practitioner interested in learning more about lipedema?  Then meet me in St Louie!

For more information:

https://www.eventbrite.com/e/living-with-lipedema-and-dealing-with-dercums-tickets-19289811345

The Stairs are (Now) My Friend

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It’s the little things that become the big things after surgery. This week I am struck as I am taking the stairs (by choice) and I can climb them without holding on (although out of habit I catch myself holding on). And my knees don’t hurt!  Three years ago, maybe even four, I was diagnosed with Chondromalacia in my knees.  I’ve lost weight, went to physical therapy and nothing had helped my knees.  That is, until I had surgery.  I think it’s only a matter of time before the Chondromalacia is completely healed.  Stairs no longer hurt, I can semi-squat, and do leg presses.  My goal is to do full squats but I know it takes time to heal!  Patience is a virtue, I’m reminded frequently.