I can’t believe I am sharing this publicly… When I had surgery a few years ago, I made them write my weight on paper and not say it out loud in front of my boyfriend. It’s no secret I’m a “big girl,” but only from the waist down.
I should share that lipedema fat cannot be lost with diet or exercise. For years, I would count calories and nothing. I wouldn’t lose a single pound. I got very discouraged. At many points in my life, I figured if I can’t lose weight, I might as well eat what I want and be fat and happy. My weight gain wasn’t gradual. It was always in 20 pound increments all the sudden. And then I would maintain that weight for years.
[Now I know it isn’t caloric restriction that is important for people with lipedema but rather the kinds of food. An anti-inflammatory way of eating (like Paleo) is essential. I was eating Lean Cuisines, drinking diet coke, booze and 100-calorie snack packs. My calories were fine, my nutrition was awful. And no, I wasn’t gouging in the closet either.]
To add insult to injury, about five years ago I was misdiagnosed with hyperthyroidism and put on medication to slow down my thyroid. I even questioned the doctor as typically hyperthyroidism is found in skinny people. I would expected hypo but not hyper. I gained 40 pounds in 6 weeks. It was awful. I have not been able to lose the weight.
My high was 238 (did I say that out loud?!) I lost 15 pounds through hCG a year and half ago. And before you jump into the “that’s quackery” bandwagon, I did this through a very well respected physician and nutritionist who modified the program to be healthy. I detoxed before starting and my fat loading wasn’t oreos and fried chicken but rather avocados, nuts and other healthy fats. Check out this article: http://wholehealthchicago.com/2012/08/27/the-hcg-diet-actually-works/
I maintained the weight loss for a year and half through a mostly Paleo way of eating (I would lose 5 pounds while eating Paleo… Could gain it back when I fell off the wagon, that pesky inflammation that lipedema feeds off.)
Going into surgery, I weighed 220. I immediately lost 15 pounds (Dr. Jason Joel Emer took out ALOT during those 3 surgeries). And even with traveling, feeling sick, and more cheat days than I should, I’ve lost an additional 5 pounds. I know I am one of the lucky ones and am extremely grateful.
Even better than the scale is that nothing fits! Happy dance!!!
Whew! That was a hard post to write!